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www.nprinc.com
Print Resources
The offices
listed on this state sheet are primarily state-level offices. Even
if an office is not close to your home, they can usually put you
in touch with resources in your community, as well as provide you
with information and assistance about disability issues in your
state. If you find that an address or number has changed or is incorrect,
please e-mail us at halle@geneso.edu and let us know.
State Agencies and Organizations
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UDLinNYS.org Universal
Design for Learning in New York State
United States Senators
Honorable Hillary Rodham Clinton (D)
476 Russell Senate Office Building
Washington, DC 20510
(202) 224-4451
(202) 228-0282 (Fax)
(202) 224-6821 (TTY)
E-mail Web Form: http://clinton.senate.gov/email_form.html
Web: http://clinton.senate.gov
Honorable Charles E. Schumer (D)
313 Hart Senate Office Building
United States Senate
Washington, DC 20510
(202) 224-6542
(202) 224-5871 (Fax)
E-mail Web Form: http://schumer.senate.gov/webform.html
Web: http://schumer.senate.gov
United States Representatives
To find the contact information for your representative in the
House of the U.S. Congress, visit the House’s Web site at: www.house.gov,
or call: (202) 225-3121; (202) 225-1904 (TTY).
Governor
Honorable George E. Pataki
State Capitol
Albany, NY 12224
(518) 474-7516
E-mail form available on Governor's Web site.
Web: www.state.ny.us/governor
Official State Web Site
Web: www.state.ny.us
State Department of Education: Special Education
Dr. Rebecca Cort, Interim Deputy Commissioner
Office of Vocational and Educational Services for Individuals with
Disabilities (VESID)
State Education Department
1 Commerce Plaza, Room 1606
Albany, NY 12234
(518) 474-2714
Web: www.nysed.gov
State Coordinator for NCLB
(No Child Left Behind)
James A. Kadamus, Deputy Commissioner
Elementary, Middle, Secondary and Continuing Education
New York State Department of Education
Education Building Annex
89 Washington Avenue, Room 875
Albany, NY 12234
E-mail: nysed@mail.gov
Web: www.nysed.gov
Programs for Infants and Toddlers with Disabilities: Ages Birth through
2
Barbara McTague, Acting Director
Early Intervention Program
New York State Department of Health
Empire State Plaza, Corning Tower Building, Room 287
Albany, NY 12237-0618
(518) 473-7016
E-mail: blm01@health.state.ny.us
Web: www.health.state.ny.us
Programs for Children with Disabilities: Ages 3 through 5
Erlinda Rejino, Manager
Office of Vocational and Educational Services for Individuals with
Disabilities (VESID)
State Education Department
1 Commerce Plaza, Room 1624
Albany, NY 12234
(518) 473-6108
E-mail: erejino@mail.nysed.gov
Web: www.vesid.nysed.gov
State Vocational Rehabilitation Agency
Lawrence Gloeckler, Deputy Commissioner
Office of Vocational and Educational Services for Individuals with
Disabilities (VESID)
State Education Department
1 Commerce Plaza, Room 1606
Albany, NY 12234
(518) 474-2714
Web: www.nysed.gov
Coordinator for Transition
Services
Doris Jamison, Manager
Planning and Research
Office of Vocational and Educational Services for Individuals with
Disabilities
One Commerce Plaza, Room 1609
Albany, NY 12234
518-474-7566; (800) 222-5627
E-mail: djamison@mail.nysed.gov
Web: www.vesid.nysed.gov
State Mental Health Agency
Sharon Carpinello, Acting Commissioner
Office of Mental Health
44 Holland Avenue
Albany, NY 12229
(518) 474-4403
E-mail: colejxw@omh.state.ny.us
Wer: www.omh.state.ny.us
State Mental Health Representative for Children and Youth
Michael Zuber, Ph.D., Associate Commissioner
Bureau of Children and Families
Office of Mental Health
44 Holland Avenue
Albany, NY 12229
(518) 473-6902
E-mail: cocompz@omh.state.ny.us
State Mental Retardation Program
Thomas Maul, Commissioner
New York State Office of Mental Retardation and Developmental Disabilities
44 Holland Avenue
Albany, NY 12229
(518) 473-1997
Web: www.omr.state.ny.us
State Developmental Disabilities Planning Council
Sheila Carey, Executive Director
New York State Developmental Disabilities Planning Council
155 Washington Avenue, 2nd Floor
Albany, NY 12210
(518) 486-7505; (800) 395-3372
E-mail: scarey@ddpc.state.ny.us
Web: www.ddpc.state.ny.us
Protection and Advocacy
Agency
Marcel Chaine, Director Advocacy Services Bureau
New York State Commission on Quality of Care
401 State Street
Schenectady, NY 12305-2397
(518) 388-2892; (800) 624-4143
E-mail: marcelc@cqc.state.ny.us
Web: www.cqc.state.ny.us
Richard Warrender, State Advocate
New York State Office of Advocate for Persons with Disabilities
1 Empire State Plaza, Suite 1001
Albany, NY 12223-1150
(518) 474-5567 (V); (518) 473-4231 (TTY)
(800) 522-4369 (V/TTY/Spanish, in NY only)
E-mail: oapwdinfo@advoc4disabled.state.ny.us
Web: www.oapwd.org
Client Assistance Program
Michael Peluso, CAP Director
New York State Commission on Quality of Care
401 State Street
Schenectady, NY 12305-2397
(518) 388-2892; (800) 624-4143
E-mail: michaelp@cqc.state.ny.us
Web: www.cqc.state.ny.us
Programs for Children with
Special Health Care Needs
Susan Slade, Program Director
Children with Special Health Care Needs
New York State Department of Health
ESP-Corning Tower Building, Room 208
Albany, NY 12237-0618
(518) 474-2001
E-mail: sjs11@health.state.ny.us
Web: www.health.state.ny.us
State CHIP Program
(health care for low-income uninsured children)
Child Health Plus
New York State Health Department
Box 2000
Albany, NY 12220
(800) 698-4543; (877) 898-5849 (TTY)
Web: www.health.state.ny.us/nysdoh/chplus/index.htm
Programs for Children and
Youth who are Blind or Visually Impaired, or Deaf-Blind
Thomas Robertson, Associate Commissioner
Commission for the Blind and Visually Handicapped
Office of Children and Family Services
Capital View Office Park
52 Washington Street, Room 201
Rensselaer, NY 12144-2796
(518) 473-1801
Web: www.dfa.state.ny.us/cbvh
Programs for Children and
Youth who are Deaf or Hard of Hearing
Dorothy Steele, Coordinator, Deaf Services
Office of Vocational and Educational Services for Individuals with
Disabilities (VESID)
One Commerce Plaza, Room 1601
Albany, NY 12234
(518) 474-5652 (V/TTY)
(800) 222-5627 (V/TTY)
E-mail: dsteele@mail.nysed.gov
Web: www.vesid.nysed.gov/
Telecommunications Relay
Services for Individuals who are Deaf, Hard of Hearing, or with
Speech Impairments
(800) 421-1220 (V)
(800) 662-1220 (TTY); 711 (TTY)
(877) 662-4234 (Speech to Speech)
Regional ADA & IT Technical Assistance Center
Andrea Haenlin-Mott, Director
Northeast ADA & IT Center
Cornell University
331 Ives Hall
Ithaca, NY 14853
(607) 255-6686 (V/TTY/Spanish); (800) 949-4232 (V/TTY/Spanish)
E-mail: northeastada@cornell.edu
Web: www.ilr.cornell.edu/ped/northeastada
University Centers for Excellence
in Developmental Disabilities
Dr. Steven Wolf, Director
Developmental Disabilities Center
St. Lukes - Roosevelt Hospital Center
1000 10th Avenue
New York, NY 10019
(212) 523-6230
Ansley Bacon, Executive Director
Westchester Insitute for Human Development/UCE
Cedarwood Hall
Valhalla, NY 10595-1689
(914) 493-8204
E-mail: Ansley_Bacon@NYMC.edu
Web: www.nymc.edu/wihd
Herbert J. Cohen, M.D., Director
University Center for Excellence in Developmental Disabilities Education,
Research and Service
Rose F. Kennedy Center
Albert Einstein College of Medicine/Yeshiva University
1410 Pelham Parkway South
Bronx, NY 10461
(718) 430-8522
E-mail: hcohen@aecom.yu.edu
Dr. Philip Davidson, Director
Strong Center for Developmental Disabilities
University of Rochester Medical Center
601 Elmwood Avenue
P.O. Box 671
Rochester, NY 14642
(585) 275-2986
E-mail: phil_davidson@urmc.rochester.edu
Web: www.urmc.rochester.edu/strong/scdd
Technology-Related Assistance
Lisa Rosano-Kaczkowski, Project Director
New York State TRAID Project
New York State Office of Advocate for Persons with Disabilities
One Empire State Plaza, Suite 1001
Albany, NY 12223-1150
(518) 474-2825 (V); (518) 473-4231 (TTY);
(800) 522-4369 (V/TTY/Spanish, in NY only)
E-mail: traid@oapwd.org
Web: www.oapwd.org
State Mediation System
Elaine Gervais, Associate in Special Education
Office of Vocational and Educational Services for Individuals with
Disabilities (VESID)
One Commerce Plaza, Room 1619
Albany, NY 12234
(518) 486-7462
E-mail: egervais@mail.nysed.gov
Web: www.vesid.nysed.gov/lsn
Special Format Books for Children and Youth Ages 3-19
(Serving upstate New York)
Jane Somers, Director
Sharon B. Phillips, School and Youth Services Librarian
New York State Talking Book and Braille Library
New York State Library
Cultural Education Center, Empire State Plaza
Albany, NY 12230
(518) 474-5935; (800) 342-3688
E-mail: tbblkids@mail.nysed.gov
(school/youth services)
E-mail: tbbl@mail.nysed.gov
(adult services)
Web: http://www.nysl.nysed.gov/tbbl/index.html
(Serving New York City and Long Island)
Robert McBrien, Head Librarian
Andrew Heiskell Library for the Blind and Physically Handicapped
New York Public Library
40 West 20th Street
New York, NY 10011
(212) 206-5400; (212) 206-5425
E-mail: ahlbph@nypl.org
Web: http://talkingbooks.nypl.org
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Disability-Specific Organizations
Attention Deficit Disorder
To identify an ADD group in your state or locality, contact either:
Children and Adults with Attention-Deficit/Hyperactivity Disorder
(CHADD)
8181 Professional Place, Suite 201
Landover, MD 20785
(301) 306-7070
(800) 233-4050 (Voice mail to request information packet)
Web: www.chadd.org
Attention Deficit Disorder Association (ADDA)
P.O. Box 543
Pottstown, PA 19464
(484) 945-2101
Web: www.add.org
Autism
To
identify an autism group in your state, contact:
Autism Society of America
7910 Woodmont Avenue, Suite 300
Bethesda, MD 20814
(301) 657-0881; (800) 3-AUTISM
Web: www.autism-society.org
Blind/Visual Impairments
Regina Genwright, Director of Information Center
American Foundation for the Blind
11 Penn Plaza, Suite 300
New York, NY 10001
(212) 502-7600; (212) 502-7662 (TTY)
E-mail: afbinfo@afb.org
Web: www.afb.org
Brain Injury
Judith Avner, Executive Director
Brain Injury Association of New York State
10 Colvin Avenue
Albany, NY 12206
(518) 459-7911; (800) 228-8201 (in NY)
E-mail: info@bianys.org
Web: www.bianys.org
Cerebral Palsy
Michael Parker, Ph.D., Executive Director
Cerebral Palsy Associations of New York State
330 W. 34th Street
New York, NY 10001
(212) 947-5770, ext. 201
E-mail: nysucpa@aol.com
Web: www.cerebralpalsynys.org
Epilepsy
Richard Daly, Executive Director
Epilepsy Foundation of Long Island
506 Stewart Avenue
Garden City, NY 11530
(516) 739-7733
E-mail: rdaly@epil.org
Web: www.efli.org
George H. Smith, Executive Director
Epilepsy Society of New York City
305 7th Avenue, 12th Floor, Suite 202
New York, NY 10001
(212) 633-2930
E-mail: main@epilepsynyc.org
Web: www.efnyc.org
Learning Disabilities
Michael Helman, President
Learning Disabilities Association of New York State
1202 Troy-Schenectady Road, Building 1
Latham, NY 12110
(518) 608-8992
E-mail: statelda@ldanys.org
Web: www.ldanys.org
Mental Health
Joseph A. Glazer, President/CEO
Mental Health Association of New York State
194 Washington Avenue, Suite 415
Albany, NY 12210-2317
(518) 434-0439; (800) 766-6177
E-mail: info@mhanys.org
Web: www.mhanys.org
Michael Silverberg, President
National Alliance for the Mentally Ill of New York State
260 Washington Avenue
Albany, NY 12210-1312
(518) 462-2000; (800) 950-3228
E-mail: info@naminys.org
Web: www.naminys.org
Paige Macdonald, Executive Director
Families Together in New York State, Inc.
15 Elk Street
Albany, NY 12207
(518) 432-0333; (888) 326-8644 (in NY)
E-mail: info@ftnys.org
Web: www.ftnys.org
Mental Retardation
Marc Brandt, Executive Director
NYSARC, Inc.
393 Delaware Avenue
Delmar, NY 12054
(518) 439-8311; (800) 724-2094
E-mail: brandtm@nysarc.org
Web: www.nysarc.org
Speech and Hearing
Tricia Shaw, Executive Assistant
New York State Speech-Language-Hearing Association, Inc.
1 Northway Lane
Latham, NY 12110
(518) 786-0947
E-mail: info@nysslha.org
Web: www.nysslha.org
Spina Bifida
Vanessa and Kevin Chamberlain, Co-Presidents
Spina Bifida Association: Albany/Capital District
109 Spring Road
Scotia, NY 12302
(518) 399-9151
E-mail: SBAALBANY102@aol.com
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Organizations Especially for Parents
Parent Training and Information Center (PTI)
Paul Shew, Executive Director
The Advocacy Center
590 South Avenue
Rochester, NY 14620
(585) 546-1700; (800) 650-4967 (in NY)
E-mail: info@advocacycenter.com
Web: www.advocacycenter.com
Jill Chaifetz, Executive Director
Advocates for Children of New York (New York City)
151 W. 30th Street, 5th Floor
New York, NY 10001
(212) 947-9779
E-mail: info@advocatesforchildren.org
Web: www.advocatesforchildren.org
Karen Thoreson Schlesinger, Executive Director
Resources for Children with Special Needs, Inc.
116 E. 16th Street, 5th Floor
New York, NY 10003
(212) 677-4650
E-mail: info@resourcesnyc.org
Web: www.resourcesnyc.org
Donald Lash, Executive Director
Sinergia/Metropolitan Parent Center
15 W. 65th Street, 6th Floor
New York, NY 10023
(212) 496-1300
E-mail: Sinergia@panix.com
Web: www.sinergiany.org
Community Parent Resource
Center
(Serving Green Point and Williamsburg)
Lourdes Rivera-Putz, Program Director
United We Stand of New York
202 Union Avenue, Suite L
Brooklyn, NY 11211
(718) 302-4313/4314
E-mail: uwsofny@aol.com
Web: www.taalliance.org/ptis/uws/
Partners in Policymaking
Joyce Steel, Program Director
The Advocacy Center
590 South Avenue
Rochester, NY 14620
(585) 546-1700, ext. 234
E-mail: steel@advocacycenter.com
Web: www.advocacycenter.com
Parent-To-Parent
Janice Fitzgerald, Executive Director
Parent to Parent of New York State
500 Balltown Road
Schenectady, NY 12304
(518) 381-4350; (800) 305-8817
E-mail: info@parenttoparentnys.org
Web: www.parenttoparentnys.org
Parent Teacher Association
(PTA)
Penny Leask, President
New York State Congress of Parents and Teachers, Inc.
One Wembley Square
Albany, NY 12205-3830
(518) 452-8808; (877) 5NYSPTA
E-mail: office@nypta.com
Web: www.nypta.com/
Other Parent Organization
(Information about resources serving children birth to 5 and
their families)
Elaine Gervais, Associate in Special Education
Early Childhood Direction Centers
Office of Vocational and Educational Services for Individuals with
Disabilities (VESID)
One Commerce Plaza, Room 1619
Albany, NY 12234
(518) 486-7462
E-mail: egervais@mail.nysed.gov
Web: www.vesid.nysed.gov
The Family Resource Network, Inc
46 Oneida Street
Oneonta, New York 13820
(607) 432-0001; (800) 305-8814
E-mail: familyrn@dmcom.net
Web: www.geocities.com/familyrn/
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Other Disability Organizations
Christine McMahon, Chief Operating Officer
Easter Seals New York
230 Washington Avenue, Extension
Albany, NY 12203
(518) 456-4880; (800) 727-8785 (in NY)
E-mail: essofny@aol.com
Web: www.ny.easter-seals.org
MENTOR ABI Group - New Jersey
Rehabilitative and Support Services for Persons with Acquired Brain
Injury
505 S. Lenola Road
Blason Office Plaza II, Suite 217
Moorestown, NJ 08057
(856) 235-5505
Web: http://nj.thementornetwork.com/state/index.asp
Caroline Alterio, President
New York State Occupational Therapy Association
90 S. Swan Street
Albany, NY 12210
(518) 462-3717
E-mail: nysota@nysota.org
Web: www.nysota.org
Dr. Bebe Bernstein, Director
VSA arts of New York City
18-05 215 Street, Suite 15N
Bayside, NY 11360
(718) 225-6305 (V/TTY)
E-mail: Bbvsanyc@msn.com
Joseph O'Connell, Executive Director
Family Empowerment Council, Inc.
225 Dolson Avenue, Suite 403
Middletown, NY 10940
(845) 343-8100
E-mail: joconnell@familyempowerment.org
Web: www.familyempowerment.org
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